National Resources

The resources listed in the section cover a wide range of information and services available to families of infants and young children who are deaf and hard of hearing. The agencies and organizations included are all nonprofit or publicly funded. All are well-established organizations with a history of providing service. All have servicer information potentially useful to families of young children with hearing loss. While this list is extensive, is by no means a complete list of every service and organization available. Use this guide as a starting point for connecting to resources that’ll be helpful to your family.

 

Alexander Graham Bell Association for the Deaf and Hard of Hearing

Address: 3417 Volta Place, NW Washington, DC 20007

Phone: 202-337-5220

Email: info@agbell.org

A nonprofit, membership-based information center on hearing loss. Focuses specifically on children with hearing loss, providing ongoing support and advocacy for parents, professionals, and other interested parties. Information available to parents including publications, funding sources, pamphlets, conferences, and scholarship program information. For additional information see state sources.

 

The AG Bell Academy for Listening and Spoken Language

Address: 3417 Volta Place, NW Washington, DC 20007

Phone: 202-204-4700

E-mail: academy@agbell.org

The certification body of the AG Bell Association that seeks to advance listening and talking through standards of excellence and international certification of professionals. Provides information on Auditory-Verbal Therapy (AVT), the AVT certification process, and assistance in locating an AVT therapist.

 

American Academy of Audiology (AAA)

Address: 11480 Commerce Park Drive, Suite 220 Reston, VA 20191

Phone: 800-222-2336 or 703-790-8466

E-mail: infoaud@audiology.org

A professional membership organization dedicated to providing high quality hearing care to the public. Provides consumer information and locates certified audiologists in a specified area. Website contains Consumer Education & Quick Links designed to enhance parental and public understanding of Audiology, hearing aids, and other pertinent topics.

 

American Society For Deaf Children (ASDC)

Address: #2047, 800 Florida Avenue NE, Washington DC 20002-3695

Phone: 800-942-2732

E-mail: asdc@deafchildren.org

A non-profit organization designed to provide support, encouragement, and information to families of children who are deaf or hard of hearing. Supports core values of communication access, child identification and intervention, and parents as primary decision-makers and advocates for their children.

 

American Speech Language Hearing Association (ASHA)

Address: 2200 Research Boulevard, Rockville, MD 20850-3289

Phone: 301-296-5700

Online Contact Form

The national professional, scientific, and credentialing association for more than 166000 audiologists, speech language pathologists, and speech, language, and hearing scientists. Provides brochures, fact sheets, and information packets to the general public at no cost. A computerized referral database of audiology and SLP programs is available to meet individual consumer needs.

 

Beginnings for Parents of Children Who Are Deaf or Hard of Hearing, INC. (Beginnings)

Address: 302 Jefferson Street, Suite 110, Raleigh, NC 27605

Phone: 800-541-4327

Email: raleigh@ncbegin.org

A non-profit organization that provides support and information in an unbiased manner to parents and professionals dealing with deaf and hard of hearing issues in children. Also provides information on communication options, placement, and educational programs; workshops for professional personnel who work with children who are deaf or hard of hearing; advocacy and support for young people.

 

Boystown National Research Hospital

Address: 555 North 30th Street, Omaha, NE 68131

Phone: 402-498-6511

Online Contact Form

A non-profit hospital that is internationally recognized for research and treatment of childhood deafness and communication disorders. Programs include the Center for Audiology and Vestibular Services; the Center for Childhood Deafness, Language, and Learning; and the Center for Medical/Surgical Services. Produces DVDs designed to help families learn signs and read effectively with young children who are deaf.

 

Callier Center for Communication Disorders

Address: 1966 Inwood Rd., Dallas, Texas 75235

Phone: 214-905-3000

A non-profit educational, clinical, and research center for individuals with communication disorders of all types. Clinical services specific to hearing loss include complete audiological testing, amplification services, aural rehabilitation classes, and cochlear implant evaluation and habilitation, with a Cochlear Implant Summer Listening camp offered on week each summer. Educational programs include specialized services for children with hearing loss, ages 2-5, within an early childhood preschool.

Central Institute for the Deaf

Address: 825 S Taylor Ave, St Louis, MO 63110

Phone: 314-977-0132

A private, non-profit institute composed of: (a) research laboratories in which scientists study the normal aspects as well as the disorders of hearing, language, and speech; (b) a school for children who have hearing loss; speech, language, and hearing clinics; and (c) professional education programs in audiology, education of persons with hearing impairment, and communication sciences.

 

Council for Exceptional Children

Address: 2900 Crystal Drive, Suite 1000, Arlington, VA 22202

Phone: 888-232-7733

E-mail: service@cec.sped.org

A non-profit organization that promotes information and programs for people with disabilities and/or gifted and talented populations. Advocates for appropriate governmental policy, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

 

Healthy Hearing Foundation

Address: 363 Seventh Ave 10th Floor, New York, NY 10001-3904

Phone: 212-257-6140 or 866-454-3924

E-mail: info@hhf.org

Hearing Health Foundation was founded as the Deafness Research Foundation in 1958, by a woman named Collette Ramsey Baker who lived with a substantial hearing loss for many years. The mission of Hearing Health Foundation is to prevent and cure hearing loss through groundbreaking research.

 

Described and Captioned Media Program (DCMP), National Association of the Deaf

Address: 1447 E. Main Street, Spartanburg, SC 29307

Phone: 864-585-1778 or 800-237-6213

E-mail: info@dcmp.org

A non-profit program with a free-loan video collection of approximately 4,000 titles. Provides open-captioned videos, available free of charge to any American with a hearing loss, or to any hearing person involved with hearing loss, such as parents and teachers. Funding for this program is provided by the U.S. Department of Education.

 

Gallaudet University

Address: 800 Florida Avenue, NE, Washington, DC 20002-3695

Phone: 202-651-5000

Gallaudet University is the world leader in liberal education and career development for deaf and hard of hearing students. The University enjoys an international reputation for its outstanding programs and for the quality of the research it conducts on the history, language, culture, and other topics related to deaf people.

 

Gallaudet University Regional Centers

The Gallaudet University Regional Centers (GURCs) are available to assist you in bringing the resources of Gallaudet University to your region, through partnerships with six host sites.

GURC – Midwest: John A. Logan College, Carterville, Illinois
GURC – Northeast: Northern Essex Community College, Haverhill, Massachusetts
GURC – Southeast: Gallaudet University, Washington, DC
GURC – Southwest: Austin Community College, Austin, Texas
GURC – Pacific: Kapi`olani Community College, Honolulu, Hawaii
GURC – West: Ohlone College, Fremont, California.

Please visit http://www.gallaudet.edu/outreach_programs/staff.html for more contact information for your region.

 

Hands & Voices

Address: PO Box 3093, Boulder CO 80307

Phone: 303-492-6283 or 866-422-0422

E-mail: Parentadvocate@handsandvoices.org

Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing. They are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support. They have local chapters comprised mainly of parents along with professionals.

 

Starkey Hearing Foundation

Phone: 800-328-8602

Online Contact Form

A non-profit domestic program of the Starkey Foundation involved in increasing public awareness about the need for available and affordable assistive technology for people with hearing loss. Provides hearing aids to people with limited financial resources.

 

Hearing Loss Association of America (HLAA)

Address: 7910 Woodmont Ave., Suite 1200, Bethesda, MD 20814

Phone: 301-657-2248

Online Contact Form

HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention, treatment, and regular hearing screenings throughout life.

 

John Tracy Clinic

Address: 806 West Adams Blvd., Los Angeles, California, USA 90007-2505

Phone: 213-748-5481

Online Contact Form

A private, non-profit organization that provides worldwide patent-centered services without charge to young children with hearing loss. Provides correspondence course and videotapes for parents of infants and children who are deaf or have hearing loss. Courses are available in English and Spanish.

 

Marion Downs Hearing Center

Address: 1793 Quentin Street, Unit 2, Aurora , CO 80045

Phone: 720-848-3042

E-mail: uch.mdhc@uchealth.org

The Marion Downs Hearing Center Foundation is a 501 (c)3 nonprofit organization that provides financial support to the Marion Downs Hearing Center.The Marion Downs Hearing Center provides culturally sensitive services, resources, education, and research to support the needs of individuals who are deaf, hard of hearing, or hearing, their families, and professionals; all activities value individual/family choice in communication and use of technology, striving to optimize the quality of life for all that it serves.

 

National Association for the Deaf (NAD)

Address: 8630 Fenton Street, Suite 820, Silver Spring, MD 20910

Phone: 301-587-1788 or 301-328-1443

Online Contact Form

A non-profit consumer organization safeguarding the accessibility and civil rights of persons who are deaf and hard of hearing in education, employment, health care, and telecommunications. Provides grassroots advocacy and empowerment, deafness related information and publications, legal assistance, policy development, public awareness and youth leadership development.

 

National Cued Speech Association

Address: 1300 Pennsylvania Avenue, NW, Suite 190-713, Washington, DC 20004

Phone: 800-459-3529

Online Contact Form

A non-profit association that promotes and supports the use of cued speech for communication, language acquisition, and literacy. Provides information, referral, and support services for persons with language, hearing, speech, and learning needs. Sponsors family camps, workshops, conferences, and scholarships. Distributes a catalog, newsletter, and journal on cued speech and hearing loss.

 

National Deaf Education Network and Clearinghouse

Online Contact

The Laurent Clerc National Deaf Education Center at Gallaudet University provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. Our mission is to improve the quality of education afforded to deaf and hard of hearing students from birth to age 21 throughout the United States.

 

National Institute on Deafness and Other Communication Disorders (NIDCD)

Address: 31 Center Drive, MSC 2320, Bethesda, MD USA 20892-2320

Phone: 800-459-3529

Email: nidcdinfo@nidcd.nih.gov

The National Institute on Deafness and Other Communication Disorders (NIDCD), part of the National Institutes of Health (NIH), conducts and supports research in the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language.

 

Oberkotter Foundation

Address: 1600 Market St., Suite 3600, Philadelphia, PA 19103

Phone: 215-751-2601

Email: info@oberkotterfoundation.org

The Oberkotter Foundation focuses its efforts on supporting families who have chosen listening and spoken language for their child and on opportunities for children learning listening and spoken language to develop their social, emotional, language and educational skills.

 

Signing Exact English Center for the Advancement of Deaf Children (S.E.E. Center)

Phone: 562-430-1467

Email: seecenter@seecenter.org

A non-profit organization hat promotes early identification and intervention, the development of improved English skills, and the understanding of the principles of Signing Exact English and its use. The organization also strives to foster the positive development of self-concept of the child who is deaf by promoting the interaction of the child and family with the Deaf and hearing communities and provides information such as videotapes, research articles, and packets to parents and educations for a minimal fee.

 

SKI-HI Institute at Utah State University

Address: SKI-HI Institute, Center for Persons With Disabilities,Utah State University
6500 Old Main Hill, Logan, UT 84322-6500

Phone: 435-797-5600

Email: skihi@usu.edu

A non-profit institute dedicated to the enhancement of the lives of young children with special needs, their families, and caregivers. Develops programs and material and provides workshops for professionals working with families of infant and young children who have a special need. The SKI-HI Curriculum: Family Centered Programming for Infants and Young Children with Hearing Loss is widely used by early intervention programs both nationally and internationally.

 

Telecommunications for the Deaf (TDI)

Online Contact Form

A national advocacy organization that promotes equal access to telecommunications and media for people who are deaf, late-deafened, hard of hearing, or deaf-blind. Provides public education and promotes consumer involvement in policies which support accessibility.

 

World Federation of the DEAF

Address: P.O. Box 65, FIN-00401, Helsinki, FINLAND

Phone: +358 9 580 3573

Online Contact Form

Recognized by the United Nations (UN) as their spokes-organization, WFD works closely with the UN and its various agencies in promoting the human rights of Deaf people in accordance with the principles and objectives of the UN Charter, the Universal Declaration of Human Rights and other general acts and recommendations of the UN and its specialized agencies.